About
Fleur O’Hare
Consumer Involvement and Advocacy Lead
Fleur O’Hare looks after participant welfare and provides support to people in their journey with clinical research at CERA and Cerulea Clinical Trials. She coordinates the Consumer Program and helps the Consumer Advisory Group bring consumer voice to the research agenda.
Fleur O’Hare
Consumer Involvement and Advocacy Lead
PhD Candidate MPhil (Med) B.Orth (Hons)
Fleur O’Hare is an orthoptist with a background in medical research and public health. She currently works within CERA’s Research Support team as the Consumer Involvement and Advocacy Lead.
Fleur has been involved in clinical research at CERA for many years. This experience, combined with her commitment to high quality care, has steered her focus toward patient advocacy and consumer engagement. Fleur believes her role is pivotal to ensuring that clinical research is a positive, inclusive and accessible experience. She is leading a program of work that entails building effective partnerships between consumers and researchers.
Current projects
Selected publications
Key collaborators
Important links
Current projects
- Coordinates CERA and Cerulea’s Consumer Program.
- Facilitates the Consumer Advisory Group and supports their work in ensuring we deliver consumer-centred research.
- Runs the Meeting Access and Inclusion Needs project, or the MAIN project. This project is looking at how we can improve the way information is shared about research opportunities.
Selected publications
To obtain a summary or copy of the papers listed below, please contact Fleur.
- Dismantling barriers to research and clinical care for individuals with vision impairment.
- Participant perspectives of information access in the informed consent process for clinical research in Australia.
- A mixed methods evaluation of clinical research staff perspectives towards informed consent practice in Australia.
- Accessible informed consent practices for people with vision and hearing access needs: a systematic literature review.
Key collaborators
- Communication, Philanthropy and Advocacy team, Centre for Eye Research Australia.
- Cerulea Clinical Trials
- Professor Lauren Ayton – Vision Optimisation Unit, Departments of Optometry and Vision Sciences and Surgery (Ophthalmology).
Important links
Contact Fleur O’Hare
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